Transparency

Sobi adheres to the ABPI and IPHA Codes of Practice in the UK and Ireland, and is committed to transparency by making public all funding and support by Sobi and healthcare professionals, healthcare organisations and patient organisations in the UK & Ireland.

Sobi has made the following payments, sponsorships and donations:

 

Payments made in 2015

 
Payments to patient organisations

UKValue

Cambridge Rare Disease Network (Donation)

£1,559

CLIMB National Information Centre for Metabolic Disease (Meeting sponsorship)£1,000
Genetic Alliance UK (Conference sponsorship and Patient support project)

£2,500


Leeds Teaching Hospital Charitable Fund (Meeting sponsorship)
£350
The British Dupuytrens Society (Corporate sponsorship)£31,600
The Haemophilia Society (Patient support survey, corporate sponsorship and young people's project) £90,650
Total£127,659
Ireland
Arthritis Ireland (Patient support project)

€1,000

Irish Haemophilia Society Ltd (Meeting sponsorship)

€6,574

Total

€7,574



Reference: NP-0698
Date of Preparation: 30th March 2015